Sunday, March 27, 2011
Thursday, March 24, 2011
Thursday, March 17, 2011
(taken from www.cff.org)
GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fundraising event. This year, I'm walking in the GREAT STRIDES walk at the 2011 Salt Lake City - The Gallivan Center, 239 S. Main St., Salt Lake City, UT walk on 05/21/2011. Please help me meet my fundraising goal of $150.00 by sponsoring me. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.
Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!
Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org.
Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!
I am asking all of my friends and family to please go to http://www.cff.org/great_strides/NikkiJohnson7105! Once you are there please "Click to donate" at the top of the screen and if you are going to be in the Salt Lake area on May 21st - join our team!!!!
Remember that ANY amount that you're able to donate - may it only be $1 or $100 - it makes a difference.
If you could take 5 minutes out of your day to do this - I'd greatly appreciate it!!!! THANKS!
Tuesday, March 15, 2011
Monday, March 14, 2011
Spencer and i have really gotten into this show. We enjoy watching it every week as we eat, do dishes or something. I think it's awesome how the bosses want to make a difference!
And yet another feel good movie that Spence and I really like. We saw the very first episode and both got teared up over it! I love feel good shows!!!
Sunday, March 13, 2011
Thursday, March 10, 2011
Emily! Met her online due to both having yucky chronic illnesses. She's been my best friend through and through. I've really enjoyed spending time with her! Too bad distance has to separate us!!!! Love you Em!!!
Syd and Jay are my bestest friends from HS. Sydney and I were always good friends, but we really connected our senior year of high school. It's hard to keep in touch with our crazy schedules - but we always manage to send eachother quick messages, and that is good enough =) Jay's been my best friend since freshman year! Again, super hard to keep in touch, and i feel guilty that we haven't talked in a long time! I miss these guys... they are a couple of the best people =)
Wednesday, March 9, 2011
One of the first places that came to my mind was CALIFORNIA! I went to San Diego to visit my best friend, Emily for a week... and then I went to LA for my senior trip.... and then LA for a video shoot.... and then LA, yet again, for the Gala. I chose this picture because almost every time I was in California I either visited Starlight headquarters... or I went there specifically because of Starlight/Starbright World. They deserve the recognition!!! They have done some pretty amazing things for me. Some of my best memories are from Starlight and all the AMAZING opportunities I've had with them :)
Tuesday, March 8, 2011
Monday, March 7, 2011
Saturday, March 5, 2011
Watching Spencer sleep was getting a little boring, so I found this on one of my friends blogs and thought I'd steal it to take up some time!!!
If you were caught cheating, would you fess up? Well first of all, I wouldn't cheat on Spencer; so there isn't an "if I cheat" in the equation here.
The last time you felt honestly broken? Broken.. Kind of a term that encompasses a lot of things, don't you think? Broken heart? Like 5 years ago? Broken, as in fed up with life and don't know what to do anymore.... probably a few days ago..
Are you craving something? I am craving to move out and get the rest of my life started with Spencer. Seriously! It's all we can talk about!!!! =)
If you could have one thing right now what would it be? My comfy bed! I don't think I'm going to spend the night here at the hospital, but usually I say that and end up doing it anyway to save money on gas! Ha!
Would you rather have ten kids, or none? Yikes. 10 kids is A LOT.. so honestly? I would probably have none :(
What do you hear right now? the whooooosh of the heater/fan thing.
Is your bed against more than one of your walls? Nope.
What's on your mind right now? The headache that I'm starting to get.. mostly likely tension from all of the stress - but unfortunately they usually turn into migraines anyway.
Are you there for your friends? I sure hope I am. I want to be, I really try to be. Lately it's been really hard with all of Spencer's health concerns and trying to focus on school, and make sure I'm doing okay myself. I haven't felt like a good friend at all this last month. Sorry friends... I'll try harder.
Last person to see you cry? Spencer.
What do you do when you get nervous? It kind of depends. I usually will play with my hands and look at the ground. Bite my nails sometimes.
Be honest, do you like people in general? Yeah! I love being around people! :)
How old do you think you will be when you finally have kids? I'm going to take a wild guess and say 24 or 25. We'll see.
Does anyone completely understand you? Uhmmm.. I don't think anyone can COMPLETELY understand you because only YOU know what you think, feel, act... etc But there are a couple people who really do get it. :)
Do you have a reason to smile right now? Yeah, I'd say there are a few reasons I could smile!!!!!
Has anyone told you they don’t ever wanna lose you? Oh yeah.
Would you be happier if life had a rewind button? Yes and No. Let me explain. As hard and crappy as some things might be, I'm thankful for everything that has happened. I learn from things and I become stronger from everything. With everything that happens I shape myself that much more. The reason I also say yes is because when you are going through those hard things it would seem, at the time, SO MUCH EASIER to go back and change one thing to make it go your way.. Hines sight!!!!
Do you tell your mom or dad everything? My momma! I tell her everything - nothing to hide!
Does it matter to you if your boyfriend or girlfriend smokes? Ooooh ya! That would be the FASTEST deal breaker for me.
Are you going to get hurt anytime soon by someone? How would I know this, exactly? ;-) lol I sure hope not!!!!!!
This time last year, can you remember who you liked? Yes I do!!! I was completely in love with Spencer!!!!
Do you think more about the past, present, or future? Past and future a lot more than present. Though there are times that that changes.
How many hours of sleep do you get a night? I really do try to get at least 8. If it's a school week - then 6-8 hours.. weekend then 8-10 hours.
Are you easy to get along with? I hope so! If not I would really like to be told this!
Do you hate the last girl you had a conversation with? No! I love my sister! :)
What was the last drink that you put in your mouth? Mango Madness Snapple!! MmmmMmmm
What size of bed do you have? Queen
Do you start the water before you get in the shower or when you get in? Before.. gotta warm it up!!!!
Do you like the rain? Yes! I LOVE the rain!
Do you think someone is thinking about you right now? I think so =) It'd be nice!
Have you ever done something you told yourself you wouldn’t do? Oh of COURSE I have. All the stinking time.
Would people refer to you as a goodie goodie, bad news, or neither? Neither. I think? Correct me if I'm wrong!
What’s the last movie you saw in theaters and with who? Dispicable Me and Spencer. i think.
Have you ever been hurt by someone you never thought would hurt you? Yup.....
Your parents are out of town. Would you throw a massive party? No. No massive parties for me
Would you rather spend a Friday night at a concert or a crazy party? Concert for sure
Do you tend to fall for the same type of person over and over? Nope!!! haha Every guy I have dated has been very different
Have you made a joke about somebody that made them cry? Not to my knowledge
Do you care too much about your appearance? Yes, probably
Are you a jealous person? Kind of, but not too bad
Have you bought any clothing items in the last week? Nope I'm very broke right now. I would like to go on a big shopping spree though.. I really need new clothes =(
Do you miss anyone? Yessss
Last person who made you cry? Spencer. I mean he didn't make me of course... but it was him who I was crying over because I was worried.
What are you doing tomorrow? Taking Spencer home from the hospital and trying to get everything together and as much things packed up as possible.
Are you the type of person who has a new boyfriend/ girlfriend every week? No no no no no.
Is there anyone you want to come see you? Yes. My family!
Ever given your all to someone who walked away? Yup. I've had a few friends like that.
Do you like cotton candy? Kind of. I have to be in the right kind of mood for it
Who was the last person you had a serious conversation with? Just a little while ago.
Do you have siblings? My sister!
Have you ever fallen asleep on someone? Yup =) The best moments!
How has the past week been for you? STRESSFUL and overwhelming. It's been really hard.
Do you have a friend of the opposite sex you can talk to? Yes i sure do!
What were you doing at midnight last night? laying in bed watching TV, trying to relax to sleep.
What is your current mood? Good. I'm pretty tired tho.
Who was the first person you talked to today? Spence
Will this week be a good one? Yes, it will! Spencer will be home, we'll be working on cleaning the apartment... He'll feel well (knock on wood) it WILL be good!
Anything happen to you within the past month that made you really happy? Yesssss! MOVING OUT! I'm so EXCITED!
Who were you with last night? Spencer until about 9:00, then myself.
Did you talk to someone until you fell asleep last night? Nope. I was all my myself.
Next time you will kiss someone? Before I go to sleep.
Who should start the kiss, the girl or the boy? Either :)
Do you have any plans for the weekend? This weekend is really over... so yes, next weekend I do have plans :)
Friday, March 4, 2011
Day 3-Your first love
So I don't exactly think I need to post a picture of him :-P But my very first love was Shawn. I was in high school and we were together for about a year. It was fun, and I really did enjoy it. He's a great person and his girlfriend is luck to have him. I learned a lot from that relationship and after it ended I really think I did a lot of self discovery and became a better person. Yes, I do say that I loved him, even thought I was very young... but it was a different kind of love than I feel with Spencer :) (of course)...
Now on to the rest of my posting. It's going to be brief. I've had a very long day and I need to try to relax to get some shut eye before the morning.
Spence was discharged yesterday.. YAY! But I had to take him to the ER this morning at 3:30 AM =( BOO!!!!
He's been sleeping upstairs because of a mold problem and so he called me at 3:00 AM and this is how it went:
Spencer: Nikki get upstairs now
Spencer: Just come up
Nikki: Are you okay?!
Spencer: Get up here!
And so I hurried upstairs and flipped on the light to find the poor guy coughing up large amounts of blood =( He coughed up half a cup. we were about to call 911 but it started to slow down a lot and so we just called the hospital instead and they told him to get there asap. So we sped off to the ER. Lovely.
Briefly, here is what happened once we got there.
4:00 AM - arrived, vitals, explanation of events, meds....
Between 4-11 AM: Doctors, doctors, sitting around, chest xray, chest CT, doctors
11:30 - 3:30 AM/PM: Moved to observation... We were told that they were just going to watch him, they didn't want to embolize yet. We waited for his CF doctor to talk to him. Slept as much as we could. especially since I only got 2-3 hours of sleep.
3:30 PM: CF doctor came into observation and talked with us about everything that had happened. She was concerned. She told us that the chest xray was unchanged, but the chest CT showed some enlarged vessels in his right middle or lower lung. It also showed that a very small portion of his right upper or middle lung was collapsed but that was nothing to be concerned about. He was having some right lung pain, and so they are pretty sure thats where the bleeding was coming from. He was still coughing up some blood, but it was slowly and throughout the day. His CF doc decided to talk with IR to see if they wanted to embolize him then, or wait.
4:30 PM: IR (interventional radiologist) wanted to go ahead and do the embolization to find the source of the bleeding and get it clotted off.
4:30 - 7:00 PM: Waited forever to hear how it went. Found out that they couldn't finish the procedure. =( The vessels in his lungs are very very curly and curvy and with that and the combination of his heart beating and moving it all around, he couldn't get the catheter to the actual place of bleeding. He was in there for a long enough time that they decided to call it quits for today. They left the Femoral Artery line in there so that they can try again tomorrow.
7:30- 8:00 PM: Moved to MICU since he as an arterial line. Found out they are trying the embolization again tomorrow at 8:30 AM. I really hope it works this time =(
So right now, I am home... waiting to jump in the bath so that I can relax. I am so so very emotionally, mentally, and physically spent. I can't function and I can't relax. We've been in the hospital all (minus like 4 days) of February. I have been by his side through all of this and it's really taking it's tole.
Please pray that this embolization goes very well tomorrow and that he can get on the road to recovery VERY soon. The sooner he can start back up his treatments the better. I'm sure he'll be in the hospital for the rest of the weekend and beginning of next week - but of COURSE I would be MORE THAN THRILLED if he can get out of there sooner.
Also, please pray for myself. I'm REALLY struggling with all of this right now. I'm having a hard time balancing everything and I need the support now more than ever. So please keep myself in your thoughts as well as Spencer. It's hard going through all of this.... kind of alone.
I'll write more later. SO SO much on my mind, but I really need to get some rest since I'm going to be up at the hospital hopefully around 8-8:15.. -sigh-