This hospitalization hasn't been half as bad as I thought it would be. We've had some rough days, of course - and some REALLY rough realizations this past week; but I think it's really helped turn his thinking around. Sometimes it IS those rough moments that you need to help you.
I wasn't wrong when I thought that he was going to come into the hospital really bad. He was VERY bad. His PFTs were only 22%, down from 41% when he last left the hospital.. I mean his lung capacity had dropped over 50% - Thats scary! One of his RTs, whom is also a good friend bluntly told him that if he didn't get his act together at home he wouldn't be here another year.. Gosh that is SO hard to hear. That kind of brought him into reality. He isn't ready to die - so therefore he has to make some changes. And he is trying. Bless his soul he really is trying. And I admire him so much for that.
It may be hard to turn things around - but when Spencer's mind is in a good place he works so very hard to make it happen. It makes me proud!
The first week here was rough. He had some good vent sessions, some good cries, and a few really good talks with doctors and friends. The first week was a HUGE success because when he went in to take 1/2 way PFTs... his numbers were GREAT! He was at 36% up from 22! =) He worked SO hard to get good PFTs that day that he really wore himself out - he had to cut rehab about 10-15 min short because he just couldn't go anymore. I was very proud of him for working hard though! He really did try hard! But not being able to do a full 20-30 min of rehab really got him down. Put things into reality that he is very frail and had a lot of work to do!
But this week has been great =) He came in here on 6 liters of oxygen, and they actually had him on a mask doing about 50% which is probably like 7-ish liters of O2... yikes! But through the course of the week - he was sating BEAUTIFULLY and was able to go down to
This is the lowest it's been in SUCH a long time!! And his sats have continued to stay above 92% sometimes will climb up to 95% =) We haven't done a room air test yet - but I think he's going to today to just see what he's sating on room air while sitting there. Shouldn't be TOO bad!!
He's off to rehab right now - and I'm sure he's working HARD!
Spencer if you read this - I am PROUD of you. You have come such a long ways this hospitalization and you overcame some really hard obstacles and realizations. I truly admire you for your strength these 2 weeks. You've put up with a lot, yet you are coming out of it with newfound strength and hope that things are going to look up. My trust in you has grown and I hope that you can keep this up despite boundaries that you have to jump over to get to the other side. You have proved that you CAN fight this battle and come out of it with flying colors. CF doesn't have you, Spencer. The road might be long and bumpy, but you have the inner strength to pull through. You just have to fight to find that inner strength and let it shine through even in the darkest hours. I love you and I am looking forward to spending much needed time with you and your new HEALTHY self ;-)
That's all for today =) Thanks for all the support and prayers!